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The national data opt-out was introduced on 25 May 2018, enablingpatients to opt out from the use of their data for research or planning purposes, in line with the recommendations of the National Data Guardian in her Review of Data Security, Consent and Opt-Outs.
Patients can view or change their national data opt-out choice at any time by using the online service at www.nhs.uk/your-nhs-data-mattersor by clicking on "Your Health" in the NHS App, and selecting "Choose if data from your health records is shared for research and planning".
Onboarding is available for use by new market entrant GP IT developers, this will allow GPIT system suppliers to develop and embed theservice into their clinical systems.
To achieve compliance, a GPIT System Supplier will need to complete the relevant NHS Digital Assurance Approach and will need to follow the SCAL process (Supplier Conformance Assessment List).
For advice, access to resources, and support contact [emailprotected].
Further information
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Take this brief module on e-learning for health.
The data protection impact assessment shows how the processing of national opt-out data has been considered in order to identify and minimise any data protection risks.
The deadline for health and care organisations to comply withnational data opt-out policy is now 31 July 2022. It has been extended to enable health and care organisations to focus their resources on the coronavirus (COVID-19) outbreak. Find out what you need to do.
Guidance and information for health and care staff about the national data opt-out, including GP practice, nursing, midwifery, care, voluntary and helpline staff.
Leaflets, posters, recommended text for privacy notices and more information you can use, to help your patients understand theirnational data opt-out choice.
What GP practices need to do to comply with the national data opt-out policy, and provide your patients with appropriate information.
How to register a national data opt-out by proxy on behalf of your patients.
Overview ofthe national data opt-out policy, to help you understand how opt-outs workand which data uses or disclosures are in scope.
Statistical analysis of national data opt-outs and how they might affect data used for research and planning.
Why and how we process your data in the National Data Opt-Out and your rights.
The equality impact assessment demonstrates how the service complies with the public sector equality duty.
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The national data opt-out does not apply to the data collected by the National Disease Registration Service on cancer, rare diseases or congenital anomalies. If you do not want the NDRS to collect your data you need to apply to opt-out with them separately.
Last edited: 22 November 2023 4:32 pm
